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Help Get My Friend Timothy LaFollette on The Ellen DeGeneres Show

July 20th, 2010 · 2 Comments

I’m posting this letter to my site in hopes some of my readers know a producer from The Ellen DeGeneres Show. Or to see if there is any media outlet that wants to take up this story.

From the Often Awesome Army to the Ellen DeGeneres Show

Our friend, Timothy LaFollette, is incredible. He is also sick. An unfair, scary and painful kind of sick that can’t be fixed. In April 2009, Tim was diagnosed at age 29 with ALS (Lou Gehrig’s Disease). At least five generations of Tim’s family have died from ALS, including his mother and grandmother, who both died within a year of their diagnosis. Tim’s subtype of ALS has a median survival rate of 12 months. Tim survived his first diagnosis “birthday”, but there have been no advances in treatment in the 28 years since his mother’s death. Tim is almost house-bound and has lost his ability to care for his basic needs.

There is a silver lining to this seemingly sad story. Tim can discuss his decline with humor and truthfulness and he has the kind of friends that give you faith in humanity. We felt helpless as we watched our friend lose muscle control and his ability to breathe on his own. We desperately wanted to care for our friend and so the Often Awesome Army was born. Our “Army” started off as a close-knit group. It grew into a 1100+ person movement with t-shirts, a care team, benefit shows and an award winning web series!

Tim is dedicated to spreading ALS awareness and believes that Ellen’s show would be a perfect match for his personality. Ellen, please help us complete his mission. We know that you’ll love him as much as we do. Will you be a soldier in the Often Awesome Army?

Contact: info@oftenawesome.org

Please feel free to copy and paste this letter and submit it to this page.


Tags: Message · Personal

2 responses so far ↓

  • 1 michelle // Aug 4, 2010 at 2:58 am

    Although I don’t know a producer for Ellen or anything like that I wanted to just say thank you for putting his story out there. Just tonight I have been an “woe is me” mood and after reading that are u kidding me? This girl needs to get a grip……so my grip is to spread the word anyway I know how….so no time to waste one must get busy thanks again…Michelle

  • 2 Andy Coon // Aug 4, 2010 at 10:19 am

    Michelle, I appreciate your response to this post and please follow us @ http://oftenawesome.com

    Spread like a wild fire.

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